ARCHIVE: AUGUST, 2007
I was at the Country Store when my friend, Roo asked me if I had been listening to the local radio station, KVMR, the previous night. I hadn't. Wish I had. Our friend, Grace, from the band, Organic Flood, wrote a poem about Nick and recited it on the radio. The next time I talked with Grace, I asked her to e-mail me with the poem and here it is:
Hi Shannon,
Here is my poem
about Nick...I
think about him
a lot and I
think it
is an amazing
synchronistic
blessing to be
making music
with Shelby
right now.
It is truly
awesome and
exciting.
Thanks so much!
Grace
Nick Snow
Let's talk about
Nick Snow, here
we go, boy born
through a window
of initiation
where cancer
transforms
with each beat
beneath his
hands, the water
of his music,
a geometry
sacred and
crystalline,
changing from
one
beautiful
snowflake form
to another,
keeping him
company
as he keeps
rhythm, healing
his body, his
ancient snow
soul
knowing the same
tools he had
long ago will
move
molecules, align
stars and atoms,
alchemical peace
healing with
creative release
of music, drum
beat, heart
beat,
the pulse of
earth beneath
his feet
conga cong,
conga cong
baboom of kick,
vibration of
snare, tribal
holla of tom,
crash, lightning
symbols in his
body configure
into light
he grins at the
camera, tosses
all his sticks
into the air
delighted to
spark spirit,
syncopation of
time,
thrum of muscle
against hide.
This is my body,
he says, this is
my blood
my holy, holy
spirit
my miracle
love, grace tea
ARCHIVE: MARCH, 2007
I was invited to speak at a Partners in Care conference in Florida at the end of March.
Keynote Speaker: Shannon Snow,
Children's Hospice & Palliative Care
Coalition, Watsonville, CA
Last September, the state
Legislature made it at least a
little easier for the 10,000 to
14,000 California families facing
heart-wrenching options for their
youngsters. The Nick Snow Children's
Hospice and Palliative Care Act of
2006, named for Shannon’s son who
had neuroblastoma, a cancer of the
nervous system, who "flunked"
hospice care twice when his
condition temporarily improved, lets
seriously ill children receive
hospice and palliative care without
having to forgo medical treatment
that might cure them or prolong
their lives.
| ARCHIVE: OCTOBER 03, 2006 Thanks from Shannon: Nick Snow’s mom. First, I would like to thank Lori and Devon and everyone working with the Coalition, for their tireless efforts to make the Nick Snow Bill a reality. Having this bill pass is a huge step forward, but we need to keep in mind that it’s just the very beginning towards realizing Nick’s (and our) dream of improving the quality of life for seriously ill children and their families. I don’t know exactly how many hours have been put into this, but I know with the extensive family interviews that were done, and the countless meetings to identify the problems with the system, and the brainstorming involved to come up with the solution (and this bill is just a part of the process of coming up with the solution), the number of hours must be astronomical. Thank you everyone for all your hard work, for pulling together such a strong Coalition, and for caring enough to make a difference. ----And I want to especially thank the people who have funded this project! It has been such an honor to work with you all, and we look forward to what comes next. Our family knows first-hand the deficiencies in children’s health services today. To allow this to continue is unacceptable, and we are dedicated to doing whatever is necessary to make Nick’s dream a reality. ARCHIVE: SEPTEMBER 05, 2006 Mrs. Shannon Snow ARCHIVE: AUGUST 30, 2006 Assembly Floor -
08/30/06
Bill
Location: Pending on
the Governor's
Desk!!! From the desk of Lori and Devon:
The Governor and
his staff have been
very supportive of
our bill, and he is
expected to sign it.
In the meantime, in
our ongoing efforts
to raise visibility
and support for the
bill, we would
appreciate it if you
would take a few
moments to write the
Governor a letter
thanking him and his
staff for their
support to date and
encouraging him to
sign the bill. ARCHIVE: JULY 26, 2006 ARCHIVE: APRIL 18, 2006 |
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