Patch & Nick

 

The Amazing Nick Snow

Get in and get your hair wet!

Nick News Links Photo Gallery Archives Visitor's Notes
Patch Adams, M.D. and Nick at Camp Winnarainbow photo by Becky Reetz 

Nick Snow was diagnosed January 1996 at the tender age of 6 with Neuroblastoma, a rare and deadly childhood cancer. He underwent 84 months of treatment (chemotherapies, surgeries, 4 types of radiation, a bone marrow transplant, many experimental therapies), and finally reached remission December 2002. Sadly, after more than three years of being cancer-free, he died April 2, 2006 from an infection. He remains a beacon of hope to all who are battling this disease.

Nick's 2005 Christmas letter to us
Dear Mom + Dad,
Hey I wanted to let you guys know how much I love you. I can’t even put it into words how much I owe you and thank you both for being there for me through all of this. I still have grief and anger about putting our family through this. Yes, I have thought about ending my life so our family does not have to live with the deep scars that this disease has brought us.

I can’t thank you guys enough for having faith and belief in me, and keeping that hope, knowing that I could beat Neuroblastoma and prove to the doctors that it is beatable. And if it weren’t for you guys, I would not be here today. Now knowing what we can get through together, I hope we can work out our pain a guilt that we have. I believe we can heal our scars if we come together as a family.

We can accomplish anything!

Every Christmas is special to me in its own way. I don’t know how many times we have heard the doctors say I would not make it to the next Christmas, so it’s just a great feeling to be alive and be able to enjoy Christmas with you both.

I don’t think I have brought this up, but I have a lot of depression about how Tyler had to grow up when I was sick. He had to do a lot by himself since you guys were with me in the hospital. Also, I don’t think he realizes how much I love him and from the bottom of my heart, I thank him for being such an amazing brother that I can look up to.

Well Mom + Dad, I love you guys so much! I hope we can start putting some of this medical stuff behind us and move on, and I hope I’ll see you next Christmas.

Love you lots!

Merry Christmas.

Love from,

XOXOXOX

Nick with the dolphin in Hawaii - January 2006


Nick's Drumming CD
click on picture to hear track 12
photo by Kristen Oliver
$10 donation

Snow
PO Box 2552
Nevada City, CA 95959

All proceeds (100%) go to Neuroblastoma research.

You may write checks directly to: N.A.N.T.

Your donation is tax deductible.
NANT (New Approaches to Neuroblastoma Therapy)

We continue our efforts to raise funds for Dr. Pat Reynolds' laboratory for his research to find the cure for Neuroblastoma, and have so far sent  $2785.45!

Orders of 10 or more, CDs are $8 each.

 

www.johnnysangels.org
 

Wheeeee!!!
Click on the picture to see pictures from
Nick's Celebration of Life Party.

Nick the news

Article by Kirsti A. Dyer MD, MS, FT

Nick's Giving Tree has 49 ornaments so far this year. Click here to see his tree.

~TODAY IS A GIFT ~a video by Debby Cowans

 


 

Legislative Day in Sacramento, March 11, 2008
We lobbied against the various state budget cuts and hopefully educated members about our pediatric hospice and palliative care waiver, which was a result of our AB 1745/Chan statute - The Nick Snow Children's Hospice and Palliative Care Act of 2006.

Nick's "Get In And Get Your Hair Wet" Bracelets

   Nick always knew that if you sit on the sidelines of life, too afraid to dive in, you would miss living. He inspired everyone he met to never give in to doubt and fear. Through his courage
and humor, Nick reminded us not to worry about the silly stuff. Whenever life gives you the opportunity, you gotta... "Get in and get your hair wet!"

***Click on the images for ordering information.***


Printed on the back of the bracelets:

 childrenshospice.org
 Nick


All proceeds benefit the Children's Hospice and Palliative Care Coalition

 

Nick Snow is on YouTube!

video time = 10 minutes, 10 seconds

See You Next Christmas
nick snow

A story by Nick Snow
 

nick1996
Partnership for Parents has made an informational website for parents of children with serious illnesses. I would like to invite you all to check it out.  Partnership for Parents
 

THE PEOPLE OF THE STATE OF CALIFORNIA
DO ENACT AS FOLLOWS: Click Here

To read the press release from governor's office:  Click Here

Nick's Bill was signed into law by Governor Arnold Schwarzenegger.
Shannon Snow (Mom) at the podium

Click on the picture to see the video. Fast forward to 14:45 to see my speech. 
Nick Snow would have been 19-years-old this coming July 17th. I wonder what he could have achieved if given more time. Yes, his life was complete, but as his mom, I wanted more. His friends are graduating from High School this year.
Locks of Love and Nick Snow's mom

Tyler and MesaTyler Snow
 


My myspace is: www.myspace.com/tylersnowsmom
Contact me: Shannon Snow
 

 
 

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